The Registry of Hope (ROH) is the data collection platform for the enterprise-wide research disease registries. The ROH currently has 13 registries in production. The priorities in FY22 have been software enhancements, production support and onboarding registry activities.
The custom software features implemented have allowed automation to take center stage this fiscal year. We can successfully supplement manual registry data entry with data from other systems such as the EDW. This will allow disease registry data abstraction to be completed more quickly in the future, contributing to an increased volume of patient data to be abstracted for research purposes.